Legitimatepainpatients.org was started due to the many issues surrounding the illicit use of dangerous drugs by individuals for whom they were not prescribed. The “pill mills” which sprung up around the State of Florida have threatened those of us who truly and legitimately need these medications to live and to have a quality of life.
This site, Legitimatepainpatients.org, will allow us to form a coalition to express our collective voices that we have rights, too. People in chronic pain may look normal or dress like others. But because pain doesn’t have a face, people who see us may not know chronic pain is a terrible and horrible disease to have.
It affects each and every one of us 24 hours/7 days a week. It can affect our families: marriages, relationships, our children and our friends. There is no time off; there are no holidays.
We hope that by having this site, chronic pain patients will have a platform to share their individual experiences with chronic pain. For example, the need to have fellowship trained pain management physicians who know your case and understands your needs and can provide the proper medications when needed.
Any issues in obtaining treatment for chronic pain or the medications or treatments needed to alleviate your symptoms should be discussed on the site so your voice can be heard. Together many voices can be brought to those in power to try and get the laws changed if necessary in order to allow our physicians to keep practicing Legitimate Pain Medicine.
We want you, the chronic pain patient, to feel free to write your thoughts and feelings you may have experienced or anything else that this disease has brought to you which you wish to share. We ask only that you identify yourself by your first name.
We hope that everyone will find a joy and comfort in their life. This is what legitimatepainpatients.org is all about.
Fred Brown
Long term chronic pain patient and Founder of this site
The intent of this blog site is not to offer medical advice of any kind. Its sole purpose is for users to share personal experiences in dealing with chronic pain. It may from time to time present published articles that relate to chronic pain issues. Any articles or studies presented are for informational purposes only. The opinions expressed in either the articles or studies are those of the articles’ authors—not this blog site. The user always should seek medical advice from their treating physician.
I would like to make a comment as a Pain Patient Advocate. I have lived for years with my husband and his struggle with chronic pain following multiple surgeries. I have participated in countless doctor appointments, physical therapy, emotional therapy, lab test appointments, treatment procedures and waited for hours in surgical patient family waiting rooms. I have many miles on my car to pharmacies and a large portion of our income has gone to the above. I also am responsible for most of our home’s upkeep since he is physically not able to do so. This is the other side of the coin for the family members of pain patients and I hope other people like myself participate in this venture also.
I’d need to check with you here. Which isn’t some thing I ordinarily do! I get pleasure from reading a post that will make folks think. Also, thanks for permitting me to comment!
I am regularly to blogging and i really appreciate your content. The write-up has actually peaks my interest. I’m going to bookmark your internet site and maintain checking for new details.
I was very pleased to discover this web-site.I wanted to thanks for your time for this marvelous read!! I certainly enjoying each and every little bit of it and I’ve you bookmarked to have a look at new stuff you blog post.
<
Excellent blog here! Also your site loads up very fast! What web host are you using? Can I get your affiliate link to your host? I wish my site loaded up as quickly as yours lol new era 59fifty fitted cap custom http://new-era-59fifty-fitted-cap-custom.webs.com/
Love your blog..
Very interesting subject, appreciate it for putting up.
I am so glad someone is doing something like this! We need to organize! what .going on in this Country is intolerable, it is like we are going back to the dark ages! I have Chronic Pain which was misdiagnosed for years as “All in my Head”, I now have nerve damage too! I am tired of wondering if my pain meds will be denied next month, Medicare limits my Appointment for Nerve frequency Ablation. I tried to work, but getting a simple accommodation like an ergonomic computer set up was impossible!
I have a friend with Fibro, who just got denied a bunch of meds, not just Opiates, for no apparent reason. I think her Doc is just too lazy to follow up on the Prior Auths. I have another friend with Chronic Pain form a Stroke, being treated with NAIDS, they are not working, but he doesn’t have the energy to go to the VA “Pain Clinic” 65 Miles away! He is growing a breast from a medication that stops the bleeding form the NSAIDS!
I could go on and on!
I am tired of it!
I live in poverty, and getting out the heavy door on my apt building is a nightmare for me. I don’t look like there is anything wrong with me so people think I am faking it, a” Drug Addict” or Malingerer. I went to a Neurologist for 6 years who lied to me, and she never even looked at my MRI’s. I have a good doctor now, but I ma so tired of all of this. I am also reacting to my pain meds, they are making me itch, I had to switch, My Insurance company arbitrarily decides not to pay for some meds!
My back is aching right now because I am on the computer! I have to go lie on my heating pad!
Lets Organize!
Dear Fred,
This is awesome that you created a website for pain patients to sound the alarm about all the problems that is going on, especially in Florida. We need as many patients to speak up that possibly can. I have been to the state capitol and rallied with patients about all of the access issues to pain medications for legitimate patients on Sept 12 2012 but we need to make more noise! There hasn’t been enough media covering our problems since then. I think the state government feels everything is ok because no one is complaining on the news anymore. We all need to say more and do more to STOP this inhumane treatment. As a poster said before, ” We are going in reverse here with pain care!” Back to the decades where there were no access to opioids for pain. The CDC , FDA, DEA and other agencies are blowing numbers out of the water for political reasons. It only makes sense for more people to be taking pain medicines because there are 100 million with daily pain, so of course the numbers are going to change. The population has exploded with 7 billion people world wide. The baby boomers are now turning 65 at the tone of 10,000 a day! The number of abusers and over doses are very low compared to these. We need to protect our rights to have access to pain medicine or the suffering will be worse than a third world country and for God’s sake! This is America!
Thanks for creating this blog and hopefully we can get more patients to speak up.
God Bless,
Donna Ratliff
The info talked about inside the article are several of the most effective out there.
We’re a group of volunteers and opening a new scheme in our community. Your site offered us with valuable info to work on. You have done a formidable job and our whole community will be thankful to you.
Nice post. I find out something additional challenging on different blogs everyday. Thanks for sharing.
lululemon
After nearly twenty years of back pain, the past two being near debilitating, my insurance finally authorized an MRI. All along my doctors and I thought it was my SI joint. Much to my dismay I have degenerative disc disease and several discs protruding, with L5/S1 with central protrusion. The pain is unbearable at times and is getting worse week by week. I have a great team of doctors; a pain interventionalist, a neurosurgeon and my primary care physician. There are times where I can’t feel my thighs, hurts to cough and breathe, literally am scared as to what tomorrow will bring. Being a Registered Nurse does not help. Hearing other nurses talking about patients complaining of back pain, accusing them of faking it infuriates me. I wonder if my family and friends have any idea how much I’m suffering. Thanks for giving me a voice. At least a place to vent.
Hi Kerry,
I usually do not answer post directly but the item that really struck a nerve with me was when you said “Hearing other nurses talking about patients complaining of back pain, accusing them of faking it”. Others, especially in many parts of the medical profession just do not get it. Often they see so many of us dressed in street clothing, business attire and figure that this person cannot be in as much pain as they say.
We as Chronic Pain Patients have to continue the battle and try to get up to the mountain top. There will be many different things that get in the way but those of us that still are able to keep the communications going and make this a national goal need to do so.
Kerry thanks for your posting.
Fred Brown Founder of this web/blog site